Sunday, September 24, 2017

Jesse 4 weeks post surgery

We are now 4 weeks post surgery.

Jesse is doing great and acting like his normal self.  The redness in his eyes was practically gone at week two and he's so happy to be back to school and playing with his friends.

Given we are pretty much healed, it's a good time to evaluate how effective the surgery was.

His chin down tilt is completely gone. Yay!  This was the one he used most often.  So we are very happy about that.

His left turn is mostly gone (i'd say 80% or more) but sometimes he still does it.  Habit?  Maybe.

What we do notice is that he still has a left tilt (left ear to left shoulder).  Remember when I described the surgery and said that we only operate on 2 of the three eye muscles?  Well the tilt is mostly corrected by operating on that third muscle.

Where does that leave us?

Well, we are going to wait and see.  Jesse goes for his follow up in two weeks but I know in my heart we aren't ready to jump into surgery #2 yet.  We want to wait and see how he develops.  If there's anything these last two years has taught me is that we don't have to rush into anything.  We will likely do a second surgery anywhere between 6 months from now and 2-3 years.  But heck, maybe it will be 10 years.  We just have to see how he adapts, how much he uses that null point.  We constantly weigh waiting to see if his null point changes vs wanting to do surgery as young as possible (pre-kindergarden).  Learning from my older son, they really get into writing in pre-k around age 4, so likely that will be our next driver.

left head tilt

Thank you for following along and I hope that these blogs have helped.  I anticipate this will be the last for a few months until there is something notable to write about.

To read the previous post, click HERE.

To follow our story from the beginning, click HERE.


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